About Us
We are a normal family that has been given an extraordinary gift. Our youngest daughter, Claire was born with Cystic Fibrosis. You may wonder how we could consider living with a chronic illness a gift. Cystic Fibrosis has taught us to not take anything or anyone for granted and try to fill each day with meaning and joy.
Living Meaningfully
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Living with Cystic Fibrosis has entirely changed our outlook on life and how we are spending the time we are given. Recognizing the small things that truly don't matter and the small things that inspire gratitude. Understanding that life is short and that we should all be aspiring to be be a part of something bigger than ourselves.
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Breathing Everyday
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The statement "breathing everyday" has special meaning to our family. Claire's CF Doc, world-renown pulmonologist, Dr. David Orenstein would ask her if she was "breathing everyday" at every CF appointment. He retired from seeing patients in July 2015 and we miss him greatly.
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Our Hope
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We have gotten through some difficult times by surviving on hope. Hope that a cure for Cystic Fibrosis would be found in time to help Claire live a healthier, longer life. The current research and therapies that are being funded by the Cystic Fibrosis Foundation are so promising that we do believe that we will see a cure for Cystic Fibrosis in our lifetime.
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